The Great Read: My Son Has a Rare Syndrome. So I Turned to the Internet.

Social media became a place of both solace and torment. How much was mine to share?

April 22, 2025, 2:00 p.m. Eastern time On weekdays and Sundays, we recommend one piece of exceptional writing from The Times — a narrative or essay that takes you someplace you might not expect to go. Illustration by Jon Han My Son Has a Rare Syndrome. So I Turned to the Internet. Social media became a place of both solace and torment. How much was mine to share? Open now Need help? Review our newsletter help page or contact us for assistance. You received this email because you signed up for top stories or great reads from The New York Times. To stop receiving The Great Read, unsubscribe. To opt out of other promotional emails from The Times, including those regarding The Athletic, manage your email settings. To opt out of updates and offers sent from The Athletic, submit a request. Subscribe to The TimesGet The New York Times app Connect with us on: Change Your EmailPrivacy PolicyContact UsCalifornia Notices The New York Times Company. 620 Eighth Avenue New York, NY 10018